Countdown begins.....

The countdown is upon us as we have three days left till we make our yearly trip to Missouri. Joe's parents are buried there, so we take a trip up there on Memorial Day weekend to decorate the grave and visit with his family. It's quite the adventure traveling with a 9, 7, 2 1/2, and 1 1/2 yr old. The trip up there last year could not have worked out any better. We left around 2 a.m. and they slept the ENTIRE trip and didn't wake up until we were pulling into the hotel parking lot. It's about a 9 hour trip. We'll be doing the same thing this year and leaving in the middle of the night, hopefully it goes as smoothly as it did last time...I can only hope. I've been working on getting my entire house clean this week and getting completely caught up on laundry because the last thing I wanna do is come home to a dirty house. I'm looking forward to a weekend spent with my husband and kids :)

My poor baby Jonah

My 20 month old grabs his crotch and screams bloody murder - he does this intermittingly all day long. the "fits" normally last about 20 minutes and then stay gone for about 30 minutes or so. They did an ultrasound on his testicles, kidneys, bladder, and intestines, checked his urine for bacteria/blood, and did blood work - it's all normal! When we arrived Jonah's blood pressure was very high, it was 143/82. The nurse even rechecked it b/c she didn't believe it was right but it was the same. Right after his blood pressure was taken he started to go into the screaming fit, they come intermittingly. This one was the worst one by far! He screamed from 3:30 until 6 pm when they started the i.v. and gave him morphine. They started with 1 dose 1.6 mll of morphine and it didn't phase him, he ws still screaming so they came in and gave him another one and that one seemed to calm him down. The Dr's and Surgeons admit they have no idea what's going on as all of the tests came back normal. They even had a "meeting" to see if someone can think of something but they are all perplexed. The Dr was afraid to send us home for the pain management issue so she admitted him overnight. We are home now since for some reason he doesn't have these screaming fits while sleeping. But we still have no idea what's going on and if he starts the fit again I'm going to have to take him back him for another iv and morphine. I'm clueless about what's wrong with him and it's the hardest thing not having an answer for something like this! I've racked my brain all day wondering what could be wrong and I'm out of options. He's been doing this since Tuesday but it got really bad Thursday evening and into Friday. I brought him to the ER Friday morning and he didn't have his "fit" while we were there so they send him home with "constipation" and we were back 3 hours later.

Here's the links for the videos that I had to take to show Vanderbilt that my son was truly in pain.
http://www.youtube.com/watch?v=9S6Snk0XEfw
http://www.youtube.com/watch?v=FIJquJlH4QQ

UPDATE

Saturday evening Jonah had spit up his kool-aid and today he spit up his oatmeal/kool-aid. Jonah has not spit up since he was breastfed almost a year ago. I called Jonah's surgeon to get him an appt and I spoke with the nurse and she mentioned that the surgeon might want to do exploratory surgery to look for adhesions to see if that could be the source of his pain. I'm  waiting on a call from the surgeon. I just want answers, there is no way that what my baby went thru for 3 days is "normal" and all of a sudden "gone" especially now that he's starting to spit up. Something is still wrong and I have a feeling it's only a matter of time before he doubles over in pain again. He's still grabbing that area and saying "owee" but hasn't screamed since Friday.